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Sexually Transmitted Disease: Getting Support


Do any of these emotions sound familiar: depression, anger, isolation, disillusionment, turmoil, fear, hopelessness? If so, you aren't alone. Most people who find out they have a sexually transmitted disease share some or all of these feelings.

Such non-medical aspects of diseases — both curable and chronic — can be more devastating than the physical symptoms. They may even interfere with the healing process; stress often makes us more susceptible to illnesses of all kinds, and can be blamed for many recurrences of chronic STDs like HPV and HSV.

Hundreds of studies have shown that the most important help in coping with a disease is social support. But when you tell someone that you have an STD, you risk social rejection, or at least an altered reputation. Recent surveys of people with HPV and HSV confirm that most people have these fears. They aren't totally unfounded either; about one-quarter of respondents said they were rejected by a sex partner after telling them they had a sexually transmitted disease.

Still, most respondents did tell current and previous partners about their infections. They also confided in friends and family. Many psychologists believe that talking to people you trust is the most important thing you can do in coming to grips with having an STD.

Stages of Coping

Having any kind of STD is difficult to face. Most people have more problems dealing with the incurable viral diseases than they do with the easily treatable infections like chlamydia, syphilis, and gonorrhea.

Some doctors have noticed that HPV and HSV patients go through a four-stage psychological healing process: denial, resistance, adjustment, and integration. Not everyone will have these same experiences, or even in this order and recurrences of the infection can start the whole process over again. Whatever you feel, the underlying concept is that your mind will let you handle only as much as you can at a given time. Knowing about the stages can help you understand where you are in the coping process.

Stage 1: Denial. This comes with the shock of being told that you have an STD. “It simply can't be true,” is your most likely thought. This is a normal reaction to emotional overload. If you are in this stage, try at least to avoid unprotected sex, because you don't want to infect anyone else.

Stage 2: Resistance. Now you are going to fight this disease. You are very goal-directed, and ready to try all different types of remedies, no matter how offbeat they are. Here is where a support group may be helpful for coming to terms with an STD and for learning about treatment options.

Stage 3: Adjustment. You're starting to realize you are one of many people who have an STD, but, you are still grieving for your lost, “clean,” innocent self. This is normal and in fact is considered to be a a positive attitude even though it doesn't feel like it. You will probably begin to rearrange your priorities and change your life in appropriate ways.

Stage 4: Integration. Now you're at peace with the situation and ready to go on with your life. It is easy to talk about the disease with others.

Hopefully, the outcome of this process is that you will be able to think of your disease in a positive way. This does not mean that having an STD is a good thing but rather that you are able to take something positive from it. Perhaps it has changed your perspective on life, brought you closer to family and friends, or offered the opportunity to look for more meaningful sexual relationships.

Telling Your Partner Isn't Easy

If you ask most people who have an STD, especially an incurable one, which is harder, coping with their infection or telling their partner, they might have difficulty deciding. For past sexual contacts, the burden can often be handled for you anonymously by public health workers whose job it is to trace sex partners of people infected with STDs. But when it comes to telling current or prospective partners, you're on your own.

Some people decide not to tell their current or potential partners about past or latent infections. They may feel no harm will come to their partners because the infection has been successfully treated or is safely dormant. Since they don't want to lose the relationship, they keep their infection a secret. However, these people appear to be a minority. In the surveys conducted among people with HPV and HSV, 69 percent reported that they told their current partner about their infection, and 49 percent said they always told potential partners, while only 6 percent said they never told potential partners.

The decision is a personal one and depends on several factors, including whether you value trust and honesty in a relationship, and whether you can live with any guilt that would arise. But basically it comes down to one simple question: would you want to know about something that could affect your health, or would you rather have someone decide that for you?

If you decide to discuss this deeply personal matter with a prospective partner, here are a few things to keep in mind:

It's best if you have already come to grips with the situation yourself. If you are unsure and depressed because you have an STD, you won't sound confident. It is unlikely that your partner will feel comfortable with the situation if you aren't, so make sure you have all the facts. Be ready to answer questions with correct information. Prepare your partner as much as possible, instead of dumping the news on him all at once. You might even want to rehearse some lines ahead of time. Whatever your state of mind, however, don't forget the importance of early treatment should your partner require it.

Pick a good time and place. There may not be a really good time to tell someone about an STD, but there are definitely bad times. Don't pick a time when you are likely to be interrupted. Don't wait until you're in bed together. And especially don't wait until after you've had sex, which will only get the issues tangled up in emotions and distrust.

Give him time to think about it. You may think that this should be easy to handle for someone who is not infected, but he has to weigh the risks of going through exactly what you did. Deciding to take a risk is not easy for a lot of people.

If the reaction is negative, you are not to blame. Most people respond well to the news. In fact, with the alarming rates of STDs in the United States, there's a reasonable chance that he's already heard a similar disclosure. Remember too, that if he can't cope with the situation, he is not rejecting you as a person; he is rejecting the risk involved. This is a difficult concept for many people, and it still hurts if someone rejects the risk you pose. But remember, you are far from alone.

For More Information...

Contact the American Social Health Association (ASHA), an organization dedicated to researching and providing information about STDs. They can send you pamphlets on various STDs. They also operate a Herpes Resource Center with ties to over 100 local self help groups for people living with herpes, and they maintain a herpes hotline. ASHA also publishes two newsletters called The Helper and HPV News.

Your local or state health department's STD clinic can provide you with care, counseling and information. Here are some other resources that may be helpful to you:

The National Herpes Hotline: 919-361-8488 (Monday through Friday, 9 am to 7 pm Eastern time)

The Herpes Resource Center: HRC, ASHA, PO Box 13827, Research Triangle Park, NC 27709. Phone: 919-361-8488.

National STD Hotline: 1-800-227-8922 (Monday through Friday, 8 am to 11 pm Eastern time)

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