WHAT YOU SHOULD
KNOW
Alzheimer's (ALS-hi-mers) disease is a long-term,
incurable brain disease in which brain cells die, causing
memory, thinking, and behavior problems. The disease usually
starts at about 65 to 70 years, but may begin earlier. In the
later stages, the patient must have 24-hour care for feeding,
personal hygiene, and bathroom needs. Alzheimer's usually lasts
from 2 to 10 years, but some people have lived up to 20 years
with this illness.
Causes
Scientists have not yet found the exact cause of the
disease. However, we do know that several factors make it more
likely. They include:
-
Advanced age
-
A head injury
-
A heart attack
-
Gender (The disease strikes
more women than men.)
Signs/Symptoms
Alzheimer's disease has three major stages. The earliest
symptoms are often mistaken for normal signs of aging.
Stage 1: Recent memory loss is the most common early
sign. People in the earliest stage of Alzheimer's may recall
what happened years ago, but forget things that occurred
yesterday. They may have trouble remembering the names of
common objects and familiar people. Recurring events may seem
to be happening for the first time. They may become confused
about the month or season. They may forget parts of their daily
routine, such as brushing their teeth or combing their hair.
Often, they will pretend to remember rather than admit their
forgetfulness.
As the disease progresses, walking may become harder for
them. It may become difficult to balance a checkbook or take
care of the house. They may have trouble making decisions that
once were easy, and may lose interest in pastimes they once
enjoyed. Any change in established routine may cause
depression, anger, or confusion.
Stage 2: At this stage, people begin to have problems
accomplishing the chores of daily living, such as choosing what
clothes to wear, eating, washing, shaving, and doing simple
jobs. Personal hygiene may no longer seem important. Victims
may fail to recognize friends and relatives, and may become
loud, violent, and hard to control. They may have trouble
sleeping, and begin wandering off.
Typically, they may seem especially anxious, restless,
and agitated in the late afternoon---a phenomenon called
sundowning. They may find it hard to recall words or talk in
normal sentences. They may switch from topic to topic until
they become hard to understand.
Emotions become more volatile and hard to control.
Victims may seem depressed or worried, or unusually happy for
no good reason. When frustrated, they may lash out childishly.
Everything may seem to take more energy, and they may become
easily fatigued.
They may begin leaving things in strange places and
forgetting where they put them. Reasoning and problem-solving
become difficult; choices and decisions become impossible. It
seems harder to plan an activity and follow through with it.
Towards the end of this stage, people may begin to suffer
hallucinations, and lose control of bladder function.
Stage 3: Towards the end of the illness, people lose all
memory and speech. Muscular control declines, and incontinence
sets in. Victims begin to exhibit extreme hostility, loss of
control, aggression and destructiveness. Finally, they lose all
ability to care for themselves.
Care
Although drugs such as Cognex and Aricept may slow the
progress of the disease in some people, Alzheimer's cannot be
stopped or reversed. Treatment involves trying to maintain a
good quality of life for as long as possible. Exercise, good
nutrition, and social activity all play their part. Medications
can help to relieve anxiety, nervousness, sleep problems, and
depression.
WHAT YOU SHOULD
DO
-
Talking: Call Alzheimer's victims by name, and speak
slowly, clearly, and calmly. Use short words and sentences.
Don't give too much information at once. The tone of your
voice and the way you look when you talk are important.
Stand where you can have eye contact and be seen. To get
their attention, you may want to touch their arm or
shoulder, hold their hand, or put your arm around their
waist.
-
If you have to repeat
yourself, always use the same words. Don't ask many
questions because the person may be disturbed at not
knowing the answer. Questions with a Yes or No answer may
be easiest. It may take a while, but wait for a response.
Remember that a victim of Alzheimer's may say one thing and
mean another. You may need to ask if you correctly heard
what the person said.
-
Give instructions one step at
a time. It may be easier to write down simple directions.
Limit the number of choices because decisions may be hard
to make. Talk only about things that are real to the
person. If he or she has a hard time talking, you may
finish the rest of the sentence. Arguing is not
helpful.
-
Eating: Meals should be taken at the same time and
in the same place each day. There will be less confusion if
there are few food choices. Eating patterns may change in
people with Alzheimer's: They may gorge and then force
themselves to vomit, or may not eat at all. Sometimes
offering small meals and snacks may cause earlier food
habits to return.
-
Serving one food at a time
may help reduce confusion. Be sure food is soft and cut in
small pieces. Remind people with Alzheimer's to open their
mouth and chew the food. Drinking liquids may be a problem.
Choose gelatin, pudding, soup, or ice cream and limit
caffeinated soft drinks, coffee, and tea. Caffeine may
increase excitability and activity. Give the person healthy
finger foods if he or she won't sit and eat.
-
In the final stages of the
disease, weight loss and difficulty swallowing may
complicate matters. Try different foods to see whether the
patient can handle one better than another. Try to get the
person to drink 6 to 8 large glasses of water each day to
prevent dehydration.
-
Safety: Make the victim's home safe to prevent
injury. Go through the house and remove or lock up
dangerous substances such as drain cleaners, paint, or
medicines. You may need to take off the stove burner
knobs.
-
Smoking is dangerous because
the person may forget to put out a cigarette. Hot water and
electrical machines may cause injury. Loose rugs can lead
to falls. Doors and windows should be tightly closed to
prevent wandering or other injury.
-
Activities: People with Alzheimer's will function
best when they have a regular routine. Try to keep care and
activities the same from day to day. Repeating familiar
activities with frequent breaks may often work best. Choose
simple pastimes that hold the person's interest, and work
with him or her on a one-to-one basis. Save difficult
chores for times when the person seems the most
alert.
-
Personal Care: Alzheimer's patients often dislike
showering or bathing. Be sure the bath water is not hot
enough to burn. They may dress without noticing the color
or pattern of their clothes. Hair care or other personal
care may not interest them.
-
Toileting: It may help to try to put a person with
early Alzheimer's on a schedule: urinating every 4 hours,
for example. Note the person's bowel movement routine and
try to maintain it.
-
Over time, people with
Alzheimer's may become unaware of the need to relieve
themselves. But you may notice that they are picking at
their clothes, touching their genital area, or acting
restless. Because they may sometimes forget the location of
the bathroom, put up bright signs showing the way. Take
them to the bathroom often.
-
Sleeping: Try to keep the Alzheimer's sufferer awake
during the day. To encourage uninterrupted sleep, limit
liquids in the evening. Warm milk at bedtime may be
helpful.
-
Wandering: You may need to install new locks on the
outside of doors to keep the patient from going outside
alone. An alarm system near doors can alert you when
they're opened. A bracelet or necklace with the person's
name and phone number on it will provide identification in
case he gets lost.
-
Pain or Discomfort: It's often hard to tell whether
someone with Alzheimer's is in pain or discomfort.
Breathing noisily, moving rigidly, or constantly making
noises may indicate pain; while a sad or scared expression
may be a sign of discomfort.
-
Depression: This problem is common in the early
stages of Alzheimer's. One tip-off is a preference for
being alone. If the person seems depressed, consult your
doctor. Medication can solve the problem.
-
Exercise: Regular activity is good for both the mind
and the body. It can help alleviate anxiety and depression
and improve sleep. Exercise can also bring more oxygen and
fuel to the brain cells. Walking is especially beneficial
for people with Alzheimer's.
-
Coping: Alzheimer's disease is a life-changing
disease for both the victim and the family. It's difficult
to accept the fact that a loved one has this disease, and
the full realization can cause fear, anger, and depression.
It helps to discuss the situation with your doctors,
family, and friends. Joining an Alzheimer's support group
can be beneficial, too.
For more information on Alzheimer's call or write: The
Alzheimer's Association, 919 N. Michigan Ave., Suite 1000,
Chicago, IL 60611-1676, 1-800-272-3900. Or call the Alzheimer's
Disease Education and Referral Center,
1-800-438-4380.
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