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Parkinson's Disease
WHAT YOU SHOULD
KNOW
Parkinson's disease is a progressive nervous disorder
that gradually disrupts normal movement. The first symptoms
typically appear between the ages of 50 and 70 years, although
a quarter of those with Parkinson's first notice a problem
during their 30's or 40's. The hallmarks of the disease are
tremors (in 70 per cent of cases) and a slowdown in movement.
After many years, mental ability may also begin a slow
decline.
Although there is no cure for Parkinson's disease, a
variety of medications can dramatically slow its advance. For
severe cases, certain surgical procedures can help. And an
experimental "pacemaker" for the brain shows considerable
promise.
Causes
Doctors do not know what triggers this disease. It's not
hereditary, and not contagious. What they do know is that, as
Parkinson's sets in, cells in the region of the brain that
governs movement slowly begin to deteriorate, producing less
and less of a chemical messenger called dopamine. The shortage
of dopamine results in diminished control of the
muscles.
Signs/Symptoms
The first sign of Parkinson's is usually a tremor of an
arm or leg on one side of the body. In time, the tremor spreads
to the other side of the body, and may eventually affect the
jaw, neck, and tongue. Weakness, a stiff neck and back, and
tight muscles are other early warning signs, although they
could just as easily have nothing to do with
Parkinson's.
As the disease progresses, movement becomes slower.
People find that motions are hard to start, difficult to
control, and a challenge to complete. Muscles become stiffer
than usual. Tightness in the back and neck may force the victim
to stoop. Rigid facial muscles produce a blank, staring
appearance. Gestures get jerky. Walking turns into a shuffle.
Falls become likely.
In most people, the muscles in the mouth and throat
eventually become involved. Speech becomes soft, indistinct,
and monotonous. Victims may stammer, run words together, or
repeat the same thing over and over. In the more advanced
stages of the disease, memory loss and confusion may set
in.
Related symptoms include difficulty sleeping, problems
swallowing, a tendency to drool, difficulty going to the
bathroom, and weight loss.
WHAT YOU SHOULD
DO
-
To keep symptoms under
control, be sure to take your medication regularly, exactly
as directed. If a medicine makes you drowsy, avoid driving
or using dangerous machinery.
-
Ask your doctor to tell you
about the side effects of the medicines you are taking.
Some medications can cause confusion or nausea. If any side
effects develop, alert your doctor
immediately
-
Maintain a healthy diet
including all 5 food groups: meat and fish, fruits,
vegetables, breads, and dairy products. You may find it
easier to eat frequent small meals. To avoid swallowing
problems, cut your food into small pieces. Use a straw to
drink liquids, if necessary. Tie a bib or napkin around
your neck to keep food off your clothes. Mealtime should be
relaxing, so don't rush.
-
To prevent constipation, eat
foods high in fiber, such as high-fiber cereals, beans,
vegetables, and whole grain breads. Prune juice is a
natural stool softener. Your doctor may also recommend an
over-the-counter product.
-
Do not carry hot foods if
your hands shake badly. The food could spill and cause a
burn. To keep your food warm, you may want to use a warming
tray.
-
Unless instructed otherwise,
drink 6 to 8 large glasses of liquid, such as water,
juices, and milk, each day. Limit caffeinated beverages,
such as coffee, tea, and soda.
-
Parkinson's disease may cause
changes in your breathing muscles, affecting your voice
level and tone. The disease may also make you speak faster
and change the way you pronounce words. A speech therapist
may work with you to try to resolve these
problems.
-
A massage may relax stiff
muscles that accompany the disease.
-
When Parkinson's disease
begins to interfere with balance and movement, your chances
of falling increase. A stooped posture contributes to the
problem, as does the tendency to "freeze" when you try to
start walking. At home, you can reduce freezing problems by
putting tape strips on floors you use often. The tapes will
help guide you to your destination.
-
To keep from falling, make
wide turns when you walk. You may feel safer with a 4-prong
cane or a walker. Remove loose carpeting from the floor. If
you have trouble getting up from a sitting position, use
chairs with side arms and hard cushions.
-
Using a raised toilet seat
will make it easier to get up. Ask a medical supply store
for suggestions. Grab bars on the walls beside toilets and
inside showers and bathtubs will also make getting up
easier---and prevent falls in the shower. A special chair
inside the shower is another option.
-
You may need extra time or
help for bathing, dressing, eating, or other personal
needs. Use an electric razor to avoid shaving cuts.
Consider wearing shoes without laces. Choose loafers or
shoes with Velcro fastenings.
-
You may find it difficult to
turn in bed or find a comfortable sleeping position. A firm
mattress may help.
-
Stop drinking liquids 3 to 4
hours before going to bed. Urinate just before lying down
so you won't have to get up during the night.
-
If your eyes become dry from
lack of blinking, try using artificial tears, available at
pharmacies and supermarkets.
-
Depression often accompanies
Parkinson's disease. There is no need to suffer this
additional problem. If you feel depressed, check with your
doctor. He can prescribe medications that
help.
-
Parkinson's is a
life-changing disease for both victim and family. Accepting
it is hard. Talk to your doctors, family, or friends about
your feelings. You may also want to join a Parkinson's
support group. For more information call or
write:
-
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American Parkinson
Disease Association
116 John Street
Suite 417
New York, NY 10038
Phone: 800-223-2732
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National Parkinson
Foundation
1501 NW 9th Avenue
Miami, FL 33136
Phone: 800-327-4545
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United Parkinson's
Foundation
360 West Superior Street
Chicago, IL 60610
Phone: 312-664-2344
Call Your Doctor
If...
-
You get nauseous. This is a
common side effect when you begin taking Parkinson's
medications.
-
You feel dizzy. This may be
caused by your medication. (Don't attempt to drive while
the feeling lasts.)
-
You develop
hallucinations---hearing, feeling, or seeing things that
aren't there.
-
You begin to feel you cannot
cope with the illness.
Seek Care Immediately
If...
-
You find yourself
contemplating suicide.
-
You undergo a big change in
behavior :mb (for example, :mx becoming very confused or
:mb excited). :mx
-
You become frightened or find
you can't stay calm.
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