WHAT YOU SHOULD
KNOW
Often dismissed as psychosomatic,
fibromyalgia is all too real to its victims. Marked by nagging
aches, pains, and stiffness throughout the body, this disease
afflicts some 3.7 million people, the majority of them women of
childbearing age. Despite its widespread incidence, however,
fibromyalgia has only recently been recognized as a distinct
disorder. It was first designated as an "official" diagnosis in
1990.
Causes
Although no single cause has been
identified, there are a number of theories. Some researchers
think the culprit may be an imbalance in the nervous system's
chemical messengers, in particular serotonin. Low levels of
this chemical are typical among fibromyalgia sufferers; and the
depression, migraines, and digestive distress that frequently
accompany fibromyalgia have also been linked to a serotonin
deficit.
Sleep disturbances may also play
a role. People with fibromyalgia often suffer from a lack of
the deep, non-rapid eye movement sleep that's especially
restorative. Stress and emotional pain are other suspected
causes, and doctors have noticed that a physical injury to the
upper spine can trigger the disease in some people. Viral
infection is another possible cause, though no specific virus
has been identified as the culprit. Some studies also suggest
that a tendency toward fibromyalgia may run in
families.
Signs/Symptoms
If you have a true case of
fibromyalgia, you'll be troubled by at least 11 of 18 "tender
points"---specific areas on your neck, shoulders, upper chest,
elbows, hips, and knees---that feel intensely painful when
touched. There may be additional tender points throughout the
body; and it isn't unusual for the most significant area of
pain to shift over time. This widespread pain lasts for at
least 3 months.
You're also likely to suffer
general aches, pain, and stiffness. Some people are plagued by
deep, muscular aching; others suffer burning or stabbing pains.
The pain and stiffness are often worst in the morning,
especially after a bad night's sleep. Most fibromyalgia victims
also suffer from a variety of additional symptoms, including
fatigue, sleep disturbances, irritable bowel syndrome
(constipation, diarrhea, abdominal pain, and bloating), chronic
headaches, pain in the muscles and ligaments around the jaw,
and heightened sensitivity to changes in the environment, such
as odors, lights, and noise.
Other potential symptoms include
depression, mood changes, anxiety, memory problems, trouble
concentrating, numbness or tingling in the hands and feet,
chest pain, pelvic discomfort, irritable bladder, dry eyes and
mouth, and dizziness.
Care
To establish a diagnosis, your
doctor will have to rule out a variety of disorders with
somewhat similar symptoms, such as lupus, rheumatoid arthritis,
multiple sclerosis, and Lyme disease. Once the diagnosis is
firm, your first priority will probably be an exercise program.
Exercise eases sore muscles, increases range of motion, and
promotes deep sleep.
Certain medications may also be
helpful. The doctor may prescribe low doses of antidepressants
such as Elavil and Prozac. The muscle relaxant Flexeril may
relieve pain and promote better sleep. Pain-relieving shots
directly into the tender points sometimes help. The
over-the-counter pain reliever Tylenol can also be helpful. (On
the other hand, nonsteroidal anti-inflammatory pain killers,
including aspirin and ibuprofen, are rarely effective because
the disease does not involve inflammation. For the same reason,
cortisone and steroid medications are unlikely to
help.)
A variety of stress-management
techniques can prove beneficial. Meditation, biofeedback,
hypnosis, and movement training have all shown promise.
Acupuncture has helped in at least one study. Other
possibilities include massage, chiropractic manipulation, and
application of ice and heat packs.
Although a few people recover
completely; the majority continue to suffer periodic bouts of
pain. Fortunately, a multipronged attack on the problem can
provide significant relief. It's also reassuring to remember
that this is one disease that doesn't get worse: It
won't become physically crippling or
life-threatening.
WHAT YOU SHOULD DO
-
Keep yourself as healthy as
possible. Talk with your doctor about the diet, exercise,
and stress-management strategies that can help you cope
with fibromyalgia.
-
Eat a balanced, nutritional
diet regularly. To combat fatigue, experts recommend a diet
low in fat and high in fiber, with plenty of fruits,
vegetables, whole grains, and beans, and only limited
amounts of dairy and beef products. Some studies indicate
that fish oil, magnesium/malic acid combinations, and
vitamins may help. However, before drastically changing
your nutritional intake, talk with your doctor or a
nutritionist about designing a diet specifically to meet
your needs.
-
Limit your intake of sugar.
The brief burst of energy it gives you at first is usually
followed by a slump. Eat more fruit and grain products
instead.
-
Reduce your consumption of
alcohol and foods and drinks that contain a large amount of
caffeine, such as coffee and soft drinks.
-
Participate in some form of
moderate exercise three to four times per week. Low-impact
aerobic exercise, such as stretching, walking, swimming, or
biking is best for people with fibromyalgia. This type of
exercise will not increase your pain, while vigorous
activities such as jogging or high-impact aerobics may make
your symptoms worse. Start off slowly and increase your
exercise time gradually until you can exercise continuously
for 20 or 30 minutes per session. In the long run, a good
exercise program will reduce your pain---just don't overdo
it.
-
Because a lack of deep,
uninterrupted sleep is thought to be a contributing factor
to fibromyalgia, try to get at least seven hours of sleep
each night and nap during the day if you feel tired.
-
Try to reduce the stress in
your life. Experiment with various ways of dealing with it,
such as deep breathing exercises, muscle relaxing
techniques, meditation, or yoga.
-
Join a local support group.
Talking with others who are experiencing the same type of
problems often can help.
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